Jackson was diagnosed with Alagille Syndrome at the age of 3 months. This is his journey.
Friday, July 20, 2012
He has What?
Jackson was born 5 weeks premature. He was having complications and spent his first 10 days in the NICU. No diagnosis was made and no treatment or on going concerns were had at that time. At one month we were noticing an odd color to his poop. His poop was white and pasty. At his 2 month appointment we decided to change his diet from breast milk to formula with a concern for malabsorption. We went back at 3 month with worsening conditions and were sent strait to the hospital. During our 2 day stay many test were preformed including a liver biopsy. He was diagnosed with a genetic disorder called Alagille Syndrome. For more information on this condition please visit
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